Showing posts with label Asperger's. Show all posts
Showing posts with label Asperger's. Show all posts

Saturday, October 17, 2015

Being Bullied Is NOT Perky





My anger at discovering a recent article written by one @KarenSisto [if you are on Twitter r, tm, no copyright infringement intended] or Karen Kabati-Sisto if you aren't

published by Autism Daily News also known as autism daily newcast dot com go look it up in your search engine yourself if you want to I am not linking to this piece of trash article

which was recently moved from some page or other to the "opinion" page

does not quite cut it for adults who identify as being autistic, aspies, on somewhere on the medically induced spectrum of autistic disordered and puzzle pieces of a certain other organization that does not speak for us, period

has prompted me to write this response.

As a very young child, I was diagnosed. My dad rejected the recommendations of the examiner. Instead of the usual route, I got the things that I needed and an excellent academic education beside.

Social situations were always difficult for me and still are.

That my dad worked hard in order to afford the much smaller classes in private schools saved me from the much worst bullying that I would have received had I been thrown into public schools and what passed for "special education" in my times.

Dad also worked hard with me. I owe much of who I am today to my father.

This rant is dedicated to him. Dad died in December 2014. I will miss him forever.


Being Bullied Is NOT Perky

The autistic teen in Ohio who was tricked into having a bucket of body fluids thrown on him-- https://tinyurl.com/qjkz6mr --would beg to differ with you, Ms. Kabati-Sisto.

So would the teen in Wales left paralyzed after being forced to jump off of a bridge-- https://tinyurl.com/pgkusd2.

Ask the twelve year old from Missouri who was beaten in the school cafeteria and suffered a fractured skull among other injuries.
https://tinyurl.com/oxfhzvx His mother had send a letter to the principal a month earlier stating that she thought her son was in danger. The student who "allegedly" beat her son weighed two hundred pounds and had other suspensions on his record. Nuff said?

Yahoo has images of "kids severely injured by bullying" to show you https://tinyurl.com/ok87hn6 mixed in with stuff that clearly isn't. Look at their faces and tell me again about the perks.

There are zero perks associated with bullying of autistic kids, period.

It is easier to quantify physical damage than emotional scars. We can give kids antibiotics and bandages and fancy wheelchairs and casts and put them in traction and make operations but we cannot heal a society that persists in justifying monstrous acts done to us by "the good that can come out of raising awareness" at the expense of our pain. 

There is no good bullying. There is only bullying. If your school system isn't working on inclusion and community building for everyone every day all day, then a feel-good article characterized in the comments as click-bait isn't going to fix anything. 

Going into survival mode for twelve years plus of school time is the opposite of true self-esteem building. Acting out of desperation is what we've learned to do at school for years. It's more of the same old same old. This article suggests nothing new, adds no new knowledge, contributes nothing constructive to a conversation that needs to happen in a meaningful inclusive way. Inclusion means having us sit down at the table as equals. That won't happen for as long as applied behavioral analysis and its damming history exists. The fish stinks from the head back.

radical sapphoq says: If something is not acceptable to say or do to a child or adult without a label, then it is not acceptable to say or do to us. Get out of our headspaces. You don' know how to interpret what you are looking at anyway. Quit spreading the big lie that autistic people "lack theory of mind." It is articles like "10 Perks Kids with Autism Get from Bullying" that demonstrate exactly who lacks what. And it ain't us.

Friday, June 13, 2008

Alex Barton, Asperger's and General Public MisEducation

The family of Alex Barton, the little Aspergian misbehaving five year old kindergardener, has decided to sue the school district for his treatment by teacher Wendy Portillo. It is reported that although he enjoyed talking on television, Alex is still evidencing signs of trauma. An attorney from the Liberty Legal Institute's Dallas branch office states that the suit is not without merit. Public opinion as expressed at the end of another article-- published by the T.C. Palm on June 7, 2008 range from "Oh noes Alex will have to goto court and that sucks," to "Give 'em a buck and be done with it," to "Yup, there is a case there." The blog Thinking in Metaphors over at
http://autisticnation.typepad.com/thinking_in_metaphors/2008/05/wendy-portillos/
comments/page/2/ is the place to go for a better understanding of the legal issues involved.

Autism, along with many other disabilities, continue to be misunderstood by the general public. Now I know that the general public does not have to understand every disability. But kids in a regular classroom should have the benefit of some accurate information. The real bother of the whole thing is that while "inclusive education" is the current buzzword, kids in general are not given any explanations about the conditions and disorders that may be effecting a few of their classmates. Thus a good friend of mine was left recently to explain Tourette's to his nine year old son. Nine year old was accused of not demonstrating an, uh, inclusive attitude because he had yelled "shut up" when a classmate kept cursing in the classroom one day. Apparently some regulation or concern about private medical information prevented the teacher from offering any useful information. The same reg or concern prompted the teacher to claim (erroneously in my estimation) that my friend did not have a right to explain Tourette's to his son either. Talk about insanity. If kids cannot talk about their differences, how are they ever going to come to an understanding of those differences? In my estimation, "Don't ask, don't tell" does not work when it comes to building community.

Now we have a teacher who decided to have a bunch of five year olds tell another five year old what they don't like about him or his behavior. Uncool for any child to have to go through. That teacher needs to find a different line of work. And in light of the lawsuit, the Florida school system would do well to inservice all of its' teachers on autistic spectrum disorder. Autism is indeed a broad spectrum of disorders. The three that illustrate a wide range of intellectual prowess and behavioral manifestations are classic (Kanner's) autism, Asperger's, and pervasive developmental disorder not otherwise specified (P.D.D.-nos). [There are two other disorders included in the spectrum which probably should be moved to a different category.] Having been forced to sit through a few "sensitivity training sessions" myself, my own prejudice is that they don't do much. I still hold that the information should be offered to teachers as well as to the students and their parents. It is at least a beginning. Furthermore, any teacher who works in an inclusive classroom ought to be dually certified-- in special education as well as in elementary or secondary education (or whatever their primary field is).

The general assumption that "all people with autism" are screaming self-stimming innocents and perpetual children is one that I personally am a bit tired of dealing with. Just last night on secondlife dot com, my avatar tried to explain to someone who was annoyed with my adopted cousin's verbal behavior that yes indeed Aspergians can be verbally obnoxious just like anybody else. The avatar to whom this short explanation was directed had protested, "He doesn't have autism! Autistics don't provoke people." Interesting how any of us can suddenly know more than the neuropsych people who have spent years in testing and observation and diagnosing of a variety of disorders and conditions.

Autism in all of its' manifestations is not something that needs curing as the Autism Squeaks parents would have us believe. Nor is it something that should be celebrated in all of its' aspects. If the Aspergian bank teller wishes to keep his job, he needs to attend to matters of personal hygiene just like the rest of us. An autistic adult who is not able to communicate her basic needs or desires certainly has a tough life journey that not many of us would envy or want to emulate. Similar things could be said of any disabling condition or disorder. There was a time when I thought that traumatic brain injury was the worst thing that could happen to me. Then it did happen through the actions of a driver who really should not have gotten stoned before getting behind the wheel of his automobile. Traumatic brain injury is not the worst thing. And autism is not truly the thing that needs curing. The worst thing is ignorance and it is ignorance that needs healing.

radical sapphoq


References:

http://www.typepad.com/t/trackback/2980678/29447288

http://www.tcpalm.com/news/2008/jun/07/alex-barton-family-plans-to-sue/

http://www.sun-sentinel.com/news/local/southflorida/sfl-0612autisticboy,0,5446826.story

http://www.libertylegal.org/

Saturday, May 31, 2008

Wendy Portillo Speaks, after a fashion

Here is the link:
http://www.tcpalm.com/news/2008/may/29/
police-report-reveals-teachers-side-incident-which/
?feedback=1#comments


According to Wendy Portillo:
1. Alex was voted out of the classroom for the rest of the day, not for good.
2. Alex was under a desk, pushing it up with his feet.
3. Second discipline referral that day.
4. Ms. Portillo wanted Alex to hear from other kids the impact of his behavior.
5. Ms. Portillo stated there are inaccuracies in a written report.

Alex's short list of crimes accused of by other students as noted by Alex to a police officer:
1. eating paper
2. picking his nose
3. eating his boogers
4. biting his shoelaces

Alex's list of bad things about Ms. Portillo as noted by Alex to a police officer:
1. She told Alex Barton that she hates him [at the time of the incident].
2. She scratched him.
3. She stepped on his shoelaces.
4. She pulled his shirt collar.

N.B. Ms. Portillo and other kids in the class refuted the last three allegations from Alex.

At least one parent has stated that Ms. Portillo is:
1. exceptional
2. caring
3. top-notch


My good friend Jeremy Crow (and those who are unfamiliar with his writing really ought to seek out his blogs) does not defend the teacher however he does point out that there has to be more to this story than is written. To that I certainly agree. I have to wonder if this incident was isolated or if it was a larger part of a long chain of incidents. Perhaps there have been other on-going issues and problems and this was the end result.

What the teacher did, as reported-- in my opinion-- was morally and ethically wrong.
This situation does bring up questions about inclusive education, the availability of aides in each classroom, teacher supervision, and the accuracy of testimony of children. I don't have any answers, just a bunch of thoughts and suppos-eds.

Seems to me that this incident surely was not the first indication that Alex Barton and Ms. Wendy Portillo were having a problem. As the adult and a teacher, Ms. Portillo has the responsibility to seek out supervision when there is a child that she finds extremely vexing in her classroom that she is either unwilling or unable to deal with.

The questions of inclusive classrooms vs. resource room pull-outs vs. special education classes I shall leave to those better qualified to answer. http://autism.about.com/b/2008/05/30/
your-thoughts-requested-how-far-should-teachers-go-to-include-children-with-autism.htm
My own observations are anecdotal in nature only and thus aren't anything to base a course of action on. Here I must point out that Alex Barton was in the process of testing on May 27th and now has been labeled as having Asperger's and A.D.H.D. http://www.cbsnews.com/stories/2008/05/30/earlyshow/
living/parenting/main4140155.shtml

The question about the accuracy of testimony of children-- children are not always very accurate. There are court cases and things written about elsewhere that point this out. To wit, the McMartin case and the children satanic sexual abuse scares of the 80s and 90s hold some examples.
http://www.newamerica.net/publications/articles/2001/the_devil_in_the_nursery

http://www.trutv.com/library/crime/criminal_mind/psychology/mcmartin_daycare/5.html


http://www.trutv.com/library/crime/criminal_mind/psychology/mcmartin_daycare/9.html

http://abusearticles.wordpress.com/2007/12/02/
investigative-issues-in-ritual-abuse-cases-part-1-and-2-1994/

http://www.religioustolerance.org/ra_mcmar.htm

http://www.religioustolerance.org/ra_case.htm


http://www.rickross.com/reference/false_memories/fsm66.html

http://www.illinoisfms.org/200505ar.html

The question about the accuracy of testimony of the accused-- let's just say that adults have been known to be reckless with the truth in a cover-your-ass world. What will come of this remains to be seen. I gather from perusing other blogs that the Dr. Phil show folks http://www.tcpalm.com/news/2008/
may/29/30gt-autistic-student-mom-receive-worldwide-hed/
have called Melissa Barton, looking for an appearance on his show. And that Alex's mother is talking about suing.

Ms. Portillo continues under administrative duties as of this writing. And Alex continues to not attend school, apparently due to his mother's wishes. He did get to talk on the telephone with a schoolmate and will get to visit this summer.

radical sapphoq

Wednesday, May 28, 2008

Voted Out of Kindergarten-- Alex Barton

The blond-haired little boy stared back at me from a photo distributed on the w.w.w. [w.w.w. = world wide wasteoftime]. In a parody of democracy in action, Alex Barton was voted out of kindergarten for the remainder of the school day last Wednesday. His crime? Having a neurological condition called Asperger's and some associated behavioral problems. The teacher-- a Wendy Portillo-- cajoled her class into voting. And reportedly had children describe what they didn't like about young Alex. One reported adjective was "disgusting." Two kids voted to keep Alex in the classroom that day. The majority voted that he be excluded. Alex who was just returned to the class from the principal's office for his behavior spent the rest of the school day in the nurse's office. Needless to say, Alex has not been thrilled about his experience.

Although folks on both sides of the issue have resorted to name-calling, what I find even more repugnant are the public comments which support Wendy Portillo in her actions. Her excuse ran something like teaching the children about tallying. I wasn't there but I have an opinion anyways-- bovine fecal matter to that. Was the teacher lying about the whys and wherefores of her ill-advised election activity a la Survivor fashion? Nah, she was just being reckless with the truth.

Yes, I know how difficult it can be to maintain reasonable discipline and order in any rowdy bunch of human beings. Been there, done that. Yes I am intimately acquainted with the cluster of symptoms which comprise Asperger's. Of course I know how aggravating it is to herd cats.

I also know the frustration of living with atypical neurology.

I do not belong to the Autism Squeaks camp. [Autism Speaks but not for me, a curebie organization of unhappy parents]. I don't understand why forcing eye contact is such a big deal to neurotypicals, don't wish to blend in, will not give up my passions, and certainly will continue to celebrate diversity. I hate all clothing that is not cotton. I detest polyester and nylon in particular. I don't use makeup or wear high heels. I used to stare at the dust specks illuminated by the sunlight pouring through a window. I was clumsy rather than graceful and the last to be picked for any gym class team. I have been accused of staring too long, daydreaming, having obsessions with the things that are of intense interest to me, being intense or too intense or thinking too much about weird things or the wrong things, eating food in a specific order rather than varying what is on the fork from bite to bite, eating the same thing for breakfast daily, not making small talk, not caring about small talk or the lives of celebrities, being a geek or a space cadet or pedantic, not fitting in. And worse, daring to be content with my own company and my own internal focus and my own way of being.

No Child Left Behind. One Child Voted Out.

radical sapphoq says: A huge phooey to Wendy Portillo. As an adult and as a teacher, I cannot believe that she didn't have other options for dealing with a misbehaving five year old.
While I support reasonable discipline and consequences for one's actions, I abhor what happened to Alex Barton. I sincerely hope that he will find a new classroom where he is valued for who he is, a teacher who knows about the issues that people on the broad autistic spectrum face and who has a better arsenal of tools for keeping order in a classroom.

Bev over at Autism Square 8 has an excellent list of who to write to should anyone feel so inclined:
http://aspergersquare8.blogspot.com/2008/05/not-special-support-alex-barton.html

Educate yourselves if you wish to. Here is a partial incomplete list which includes two news articles from the same newspaper in Florida and some other bloggers who are blogging about this crapola:

excellent thoughts about this whole mess
http://lastcrazyhorn.wordpress.com/2008/05/25/the-golden-rule/

Laura Hershey
http://crip-power.com/2008/05/27/thoughts-on-alex-barton-and-the-way-we-organize/

the politics of exclusion
http://qw88nb88.wordpress.com/2008/05/25/mend-the-link/

Amanda
http://ballastexistenz.autistics.org/?p=538


an interview with Alex Barton and his mother
http://www.cbsnews.com/stories/2008/05/27/earlyshow/main4130288.shtml


two Palm Beach Post articles-- links working as of 5/28/08
http://www.palmbeachpost.com/treasurecoast/content/tcoast/epaper/
2008/05/27/0527slteacher.html#comments

and
http://www.palmbeachpost.com/treasurecoast/content/tcoast/epaper/
2008/05/23/0523slclassvote.html?cxntlid=inform_artr